خلاصة:
Children with multiple disabilities, including cerebral palsy (CP), often lose or regress in their functional abilities during adolescence and early adulthood. The aim of this study was to investigate functional and psycho-social changes in children, adolescents, and young adults with CP. A retrospective information review chart and a prospective telephone interview were conducted on 30 patients (with an age range of 11-29 years and a mean age of 16.8 years with a standard deviation of 4.9). 73 percent of these patients (n=22) were male and 83 percent of them (n=25) suffered from spastic cerebral palsy. Based on the Mac test, the functional deficit was significant. These 4 functions were: trunk extension (P=0.03), independent standing (P=0.05), walking with or without assistive devices (P=0.014), and eating with mouth (P=0.01). The standing functional deficit had a significant correlation with the walking functional deficit (P=0.02). 63 percent of patients (n=19) had anxiety and 10 percent of them (n=3) reported having depression. The results of this study show that a reliable annual assessment tool for measuring functional and emotional changes in children with CP should replace reliance on parental memory. These data may also lead to a revision of current national physical therapy standards.
ملخص الجهاز:
6 (2002) reported that in a sample of 235 children with cerebral palsy (2-18 years old), 47 percent had a weight below the fifth percentile for their age and gender; additionally, there was a significant relationship between the severity of functional impairment related to gross motor movements and nutritional status.
B) In children, adolescents, and adults with CP, is there a relationship between functional impairment and the amount of physical therapy, the level of parental involvement in care, age, socio-emotional interactions, and surgical history?
Information Review Chart and Telephone Questionnaire Currently, there is no valid tool for the simultaneous measurement of physical functional impairment and emotional functioning in children and adults with CP.
Discussion This study examined the loss of functions and its relationship with other variables, eating-related problems, cognitive motor problems, treatments, and psychosocial issues in children, adolescents, and young adults with CP.
Factors mentioned by participants, such as increased spasticity, problems related to maintaining balance, regression of (physical) condition, and muscle stiffness and contraction, are among the possible reasons for the decreased ability to walk in children and adolescents with CP.
The findings of this study confirm previous research results showing that the loss of the ability to walk and stand is related to age (Anderson and Matteson, 2001; Ando and Ueda, 2000; and Murphy et al.
The data of the present study support the prevalence of nutritional problems, physical issues, and treatments reported in literature related to CP.
Conclusion Children, adolescents, and young adults with CP lose their motor and oral functions, experience psychosocial changes, and have problems related to eating and occupational performance issues.
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